Happenings with Logan

It has been a stressful, crazy couple weeks. I got a call Thursday, May 9th when Gina picked up Logan from school. He was acting weird and when she walked in the room to get him he stood up, acted like he had no idea who they were and went blank. The teacher saw everything too, which is good, especially so no one person thought they were loosing their mind or just seeing something that wasn't. OF COURSE, this all had to happen the week William was out of town, in Alabama for training. I was at work and let me tell you- even though nothing bad really happened, it killed me that I could not be there and all I wanted to do was rush home and hold him. The moment I was told about it, I remembered when he was about 1 1/2 years old the same thing happened- I remember it so vividly. He was in his firefighter pajamas, sitting in his high chair and we were feeding him. William and I were both there. All of a sudden he went blank/ just stared into the air. We yelled at him, clapped, shook him (gently) and nothing worked. He finally came around and it was so weird. I remember feeling so scared but at the same time it was like he just was day-dreaming. So, we watched him but kinda put it in the back of our minds, just thinking he was our crazy kid so what more do you expect? Well, it happened again at school and later that day in the back yard. I called the doctor first thing in the morning and by that point we figured the only thing it could be is Abscence seizures. So, we saw the doctor and of course, they could not do anything or say anything except to confirm our suspicions that in deed, that is what it sounds like. I am very thankful that he has no idea what happened/ what is going on. With this type of seizure, there is no state of confusion afterward- so they just kinda snap out of it and continue as normal, having no idea what happened. We had to schedule an EEG with CHOA. Our appointment was Friday, May 17th and I was so nervous. First, we told Logan all about it, we all watched the video of what would happen, etc. So, that definitely helped, especially with someone like Logan. He has got to know anything and everything that is going on/ will go on or else he gets very freaked out and upset. I think I was the most nervous out of everyone. We had to do some prepping for the EEG. First, he could have no sugar for 24hrs, then we had to cut his sleep short by at least 4 hours. That was the hard part! So I ended up putting him to sleep 2 hours later and waking him up 2 hours earlier. He was not very happy about that part! Really, I was not either- William was at work, so I lost all the sleep too! When I got him up in the morning, we had to take a bath and wash his hair so that the electrodes would stick appropriately. Then, we were on our way. We got there and he did SO well! I was so proud of him and how well he did. Here is kinda how it went, over the course of about 2ish hours:

This is at the beginning- he got up on the bed and the guy was so good with him.

Then, he started marking on his head/ forehead with a wax pencil. After all the measuring (to see where to put the electrodes) and marking, they had to clean each spot.

Then he started putting on the electrodes- one by one and he gave Logan a mirror. Again, if he can see what is going on and you have prepped him- he tends to do very well. It reminds me of when I was younger and had to have stitches in my chin- I asked for a mirror to watch and I watched the whole thing!

Eventhough nothing "happened" to him or the test did not hurt, it still broke my heart to see this- and to see him having to go through all of this- even though it was just a test. I cannot imagine what others go through with their children who need surgeries and such. 

Then they had to wrap it all up so they would not come off. 

This was the part that broke my heart. He had to lay there and blow a pinwheel thing for at least 3 minutes straight. Basically, they are getting him to breathe heavy/ hyperventilate. He was great but about 1/2 way he just starts saying he needs a rest, needs to wait a minute. Well, he couldn't or else we would have to start the test all over again. So we had to keep pushing him through and he just kept say, "I just need a break" and it just broke my heart. 

They also made him go to sleep for about 10/15 minutes. Then woke him up to flash a bunch of strobe/ cop light type things in his face. He was not excited that he had to be woken up. But, he still did a great job! 

We were so proud of him and how he handled everything! The guy doing it told us how uncommon it was for children to act so well and cooperate. There was even a child screaming across the hall- for an hour or so. We are so thankful that he was cooperative and did so well. We are so blessed and I am looking forward to seeing the results of the EEG. CHOA said the doctor should get the results within 5 business days. That puts it at Tuesday, May 28th at the latest. He has not had any more that we know of, but since it can be just a few seconds at a time, it is easily confused with inattentiveness or a child just "not listening". So, he could have had some more/ still have them and we may just not be able to catch it. Either way, it is in God's hands and if we have to press forward with treatment, we are very fortunate that they are petit mal seizures and nothing much worse. It still is stressful and upsetting and always will be when it comes to my baby but I know everything will be just fine. 

Well, we got the results... they did not see any seizures at the time of the EEG, but they did see some abnormalities that cannot be explained by that level of doctor. SO we are off to the pediatric neurologist and we will go from there. Overall, I am nervous and just want to be with him 24/7 but in the end, I know that it is all in God's hands and He will be right there with us- guiding us and carrying us every step of the way.