Logan Update

I started calling around yesterday to the 5 Pediatric Neurologists that the pediatrician gave me. The first 2 had full schedules until August and could put me on a wait list for September. So, I called the 3rd one and they just happened to have an opening for the same day- yesterday. I did NOT want to take off work- but did what I had to do. William was at work but I left and we went to the neuro. First, I must say that I LOVE this doctor- Dr. Zurbrugg. He was so great. Anyway, he saw us and read the EEG results and notes. He said that CHOA tends to be overly cautious when reading the EEG results as to not possibly miss something. So there was some uneven reaction in his brain during the light-flashing part of the test, but the doctor said that it would be that way for any child his age. In the end, we learned that he does not have steady seizure activity in his brain. So, that was fantastic, however, we still have to watch him carefully. They do not put children on meds unless there are many seizures a day - every day. When you start the meds, you have to take them twice a day for 2 years, minimum. That is definitely something we do NOT want to do right now, especially since he has just had a few episodes. So, we cannot let him take a bath (unless our eyes do not leave him the entire time) because if he has an episode, even for 5/10 seconds, he can drown. Also, we and everyone who sees him (teachers at school, church, etc.) will need to know about it, what it looks like and kinda help us out if he does have an episode. There is nothing you can do, they REALLY want a video but that is going to be difficult! So, they said to pinch his nose if he starts having one because the nose-pinching sends a signal straight to the brain. If he reacts, then the episode is either over or he was just staring off but if he does not react- he is having one. So, my homework is to ask all family members if they have ever had seizures (well female family members)- this is apparently the most genetic type of seizure. I don't think anyone has, but I will get to asking! He also has a speech dysfluency thing going on (apparently it is different than studdering) and the doctor said that it is just his brain acting so fast that his mouth cannot keep up- which is literally how it sounds when he gets going- but he said that we just need to NEVER let him see our frustration or anxiety about it and that he will outgrow it (i.e. do not sat stuff like, "spit it out" or "come on" etc. Which, we have not but trust me there are times you just want to scream!). He said there MAY be a link between that and the abscence seizures, but just a small chance. All- in- all he looks great and we will just be watching him and documenting anything that happens. Again, I am so thankful and praise God that this is all it is and that he has no idea about any of it. In the past two weeks- going to CHOA for the EEG and to this neuro office- I have really seen the other side of how things COULD be. At CHOA, you see many children walking around (or in a wagon) that have cancer, surgeries, etc. And, at the neuro, well let's just say that Logan was the most "normal" child in there- not having to have a special speech translator, didn't have major mental illness, etc. No matter how crazy, stressful or "bad" our problems seem, I know it could be much worse and that my baby could be very very sick- and I just praise God that we only have the problems that we have.